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Kindness
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My life used to be simple. I woke up, had some coffee then grabbed my bike and headed off for school. During the time when only my fiancé was working and I
was going to school, I used to mountain bike every morning without fail. I always went out between 9 am and 11 am (I am fair skinned, and the sun is still low enough in the sky that you won’t get burned as badly). Nothing beats the thrill of coming down that bitch of a hill that killed your legs going up. Especially if it is winding. It seems that I have always felt better on a bike.
I remember one ride where I actually hit the “zone” that athletes are always talking about. My then fiancé and I were up in the mountains and it started to storm quite seriously. I am talking about lightning and thunder at the same time. That’s how close the lightning was to us, and all I could think about was getting the heck out of there because my bike is made of carbon fiber. Carbon fiber is an electrical super conductor. So, I just started to haul ass out of there. I wasn’t into getting fried that day. It was the most amazing ride. I was one with the bike (which never happened), I was not thinking about how I was going to make a turn or over a log, I just found a way, and it worked. All I was really thinking about was, OMG mountain storm! Get out now! I think it was my favorite ride ever. I wish it were possible to use words to describe the experience of riding your bike through the mountains with all this lightning and thunder and hail and rain. It is one of the most exhilarating thing ever, And yes, it even beat sex.
Life was just so much simpler in those times. I was happy, I was in school and doing well, I was in love, and I had a great best friend that I used to go to the mountains with after school was out. He and I were like little kids, we explored everything that looked like it might be a trail. We were joined at the hip. If one of us showed up somewhere, it was a safe bet the other was not far behind. The sun is coming up, and the sky is turning pink. It is beautiful.
Anyway, this was long before the “diagnosis” and the medication-go-round that I ended up on. This was long before I got married which I am still trying to decide if that was big mistake or not. I love my husband, please do not get me wrong, it is just sometimes he can be incredibly difficult to deal with. He doesn’t seem to want to learn about what bipolar really is; he’d prefer to rely on his past 2 experiences with bipolar women, and both were total tramps. One was a “I’ll try anything once” type, the other one just cheated on him a lot. And neither one of them would stay on their medication so they were constantly going up and down. I, on the other hand, am medication compliant, and actually start to freak out when I have run out of medication because I know what happens when I do. It is simple, take your meds, and the mood swings will be closer to those that normal people have. It really isn’t rocket science nor does it require an advanced degree in physics.
What I think is that he cannot face his own depression. He has never received treatment for it until now when we finally reach a point where marriage counseling has become necessary, and they have a treatment plan that has us doing marriage counseling every two weeks and him doing one on one therapy every two weeks. He says that he has looked at himself and knows who and what he is. Therapy will fix that. Therapy forces you to look at yourself in a new light. He is going to finally have to confront the ugly in his nature. At least he will if he is honest with himself and the therapist. If he isn’t then therapy will do him no good. Therapy can be very scary. You will have to talk about things that you have buried so deeply it can take years to work your way through the maze of emotions surrounding the issue. I do not think he gets that. I have been in therapy for about 8 1/2 years, but I had some very dark things I had to take care of. I remember one session where I spent the entire session in a fetal ball (this was a few years ago). Something had triggered me. That’s another thing he needs to learn about: triggers. Once you can recognize them, you can control how you react to them, or at the very least manage not to let them set you off.
I swear life used to be so simple.
I recently finished a memoir entitled Manic: A Memoir written by a woman named Terrie Cheney. Her experience with mental illness, manic depression to be specific, landed her in jail where she was denied her phone call to her attorney for almost 6 hours, was denied access to her medication (which she carried with her), and she was starting to cycle into full blown mania. So, they kept her locked in a cell for several hours at a time, and finally moved her to a “private” holding cell because she was so disruptive. While in jail, she was badly beaten by a female guard who was trying to “subdue” her, however, she was attempting to subdue her with a nightstick. She was in jail for 14 hours growing more and more manic with each hour. She asked for her meds, they wouldn’t give them to her, they gave her sporadic access to the phone, and basically, treated her as if she were on something. If they had payed any attention at all, they would’ve realized, she wasn’t on something, she was off something; the medications that helped bring her down. She finally reaches her attorney, and is released. She, was very lucky, however. She could afford the high priced attorney. She was a high priced attorney herself.
Another instance of Bipolar mania had her convinced that her car was stronger than the tree in her yard, and so she drove into it. Totaling her car landed her in a psychiatric facility. That was one time. Another included the swallowing of handfuls of benzodiazepines, and stelazine while she was trying to work up the nerve and get rid of the anxiety she felt over telling her father that his cancer had spread; he had only months to live. She overdosed on those pills, and her exterminator found her on the floor barely conscious. When she awoke she was in four point restraints, and had to use the bathroom. A doctor and a bunch of residents came in to her padded room, and tried to convince her that she had attempted suicide. She hadn’t consciously done so, and she told the doctor she really needed to pee. He refused to let her until she admitted that she was suicidal. She did not believe that she was, and the doctor left without providing her with even a bedpan; she ended up peeing on herself. A nurse came in and changed the sheets, but left her on the urine soaked mattress, all the while berating her for doing what she had done. In order to get off that mattress and out of the padded cell, she finally told the doctor what he wanted to hear; yes she had tried to kill herself, but, no she wasn’t currently suicidal. The whole time she was in that room they kept her sedated with the “conventional” anti-psychotic haldol. This was only part of the experience of a manic depressive of means. Can you imagine how the down and out homeless are treated?
I am now reading a book titled Crazy: A Father’s Search Through America’s Mental Health Madness. His son experiences a psychotic break in his senior year of college. His son is in his late teens/early twenties when most mental illness will present in the form of a psychotic episode, a manic episode, or a severe depressive episode. (For my self, it was a severe depressive episode unlike any I had previously experienced; something was very wrong). His son is given the diagnosis of Bipolar Disorder and put on anti-psychotic medication which he refused to take calling it “poison.” His son was convinced there were secret messages hidden in signs and movies, particularly Oliver Stone’s Heaven and Earth. His parents tried to have him held in a psychiatric facility after having taken him to the emergency room. They were told nothing could be done because he was an adult, and he had the right to refuse treatment if he so chose, that that was the law. He couldn’t be forced to take medication, not could he be forced into a mental health facility. It was only after he was arrested for breaking into a neighbor’s house and taking a bubble bath that he was taken to a psychiatric unit on a 72 hour hold. He could, however, still refuse treatment. So, his behavior became more and more odd. His father came up with the idea that since he had been arrested it proved he was not safe; that he was, in fact, a danger to himself and others. The argument worked. His son was being charged with two felonies in relation to the break-in. So, he took his medication for a couple of days, and got sort of right in the head. The idea was that he would be booked on charges but then released to his parents so he could continue the day program he was in. The only stipulation was that he had to continue his medication and the program, and he could plead to one felony count. What was unfortunate about this was that the state Law of Virginia prohibited ex felons to work at specific jobs, and one of them was the occupation his son had just finished school for. So, all his hard work in college was washed away in the blink of the eye known as mental illness.
His parents managed to get him to voluntarily commit himself after being put in a mental hospital following another episode (he still wouldn’t take the medicine that he considered poison; his father even tried hiding it in his food). There was even a commitment hearing which was a joke because the longest they could hold him for as a voluntary patient was five days after which he could walk right back out. His insurance company was after the hospital to release him because once stabilized all their little charts and graphs said that he could continue his recovery at home or in an outpatient program. Don’t even get me going on the HMO’s in this country who play God and Doctor, and decide what the patient needs which commonly overrides the doctor and even plain common sense. I could go on for hours on that subject. His father, a well known journalist called the insurance company that was trying to kick his son out of the hospital, and informed that he used to work for the Washington Post, knew Mike Wallace, and that he would be calling both to do an expose on their company policy regarding mental health. The insurance company backed off.
All of this prompted his father to begin looking into what really happens to the mentally ill in this country, and what he found is not pretty. He began calling around to different courts and jails to find out what the laws were in that state. He finally settled in a section of Miami where there was a judge that was active in the Mental Health reform movement, and met the psychiatrist at the local jail which housed quite a few mentally ill inmates. He states in his book that it took the doctor approximately 19 minutes to do rounds and talk to all the people considered suicide risks. There were 92 people on the psychiatric floor. The author writes: “That was 12.7 seconds per inmate.”
Around the turn of the 20th century, the mentally ill were housed in a similar manner. Naked, or with nothing more than rags for clothes, they were held in the jails and
prisons often with far more people than a cell can hold. A reform movement began after a woman named Dorothea Dix saw this for herself and began a movement to build State Mental Hospitals. The states responded under pressure to do exactly that. However, conditions in the hospitals were not much better than the jails and prisons. The movement continued until some left wingers thought that the conditions in the hospital were so horrific that as long as these patients were stabilized, why couldn’t they be released back into society? Bless the left wingers, they really thought they were doing a good thing by releasing these patients. So began the de-institutionalization movement, and the state hospitals began to shut down. This was in the early 1960’s.
Well, guess what happens when a mentally ill patient forgets to take their medication? The destabilize. They become incapable of holding a job, having a home, taking meds on a regular basis, etc. They do not know they are sick again. This lands them in the streets, homeless and ill, where they are picked up usually for some minor infraction, but sometimes for more serious offenses. We are back where we started; housing the mentally ill in our jails and prisons. And the laws permit this by not requiring more hospitalization, the HMO’s are complicit in that they start asking that people be released after a couple of days on an inpatient ward. They figure using their little graphs and charts that it takes about that long to “stabilize” someone. I know from personal experience, it takes a hell of a lot longer than that. And, that is if the patient is med compliant.
I could go on and on and on about how this country treats the mentally ill. The politicians and HMO’s would never dare deny a heart patient access to medical care, nor would they not allow a diabetic their insulin. So, what the bleep makes mental health such a huge freaking issue? Is it because it involves the brain? Is it because people are inherently afraid of “going nuts?” We are not nuts, crazy, bonkers or any of those lovely terms that are used to describe someone with an organic, medically treatable disease. Manic Depression, Schizophrenia, Schizoaffective Disorder, all of these are treatable and people who are treated can become functioning members of society. So, we are a little different than the average person. Who gives a flying F&*^! The mentally ill should be treated with the same respect and dignity as everyone else. There are a whole host of people some famous and others not so much who have suffered from or do suffer from some mental illness. This country recognizes alcoholism and drug abuse as treatable diseases, so what’s up with the mentally ill being so scary? I had better stop. I am getting angry.
On Maintaining an Active Involvement in Life: “Resist the temptation to think of yourself as useless. it will only lead to depression. Find your own ways of being and feeling useful.”
The last couple of weeks have been a roller coaster ride from okay to Saturday’s really not okay. As I look back, I do not understand where all that emotion came from. All I can think is that it was the culmination of trying to get to get my point across to someone who couldn’t listen but instead thought to insert their own interpretation of my words into their consciousness. I have never in m life seen such a wild “reading between the lines,” and it has ended a friendship for which I am very sorry, and which makes my heart heavy. It also brings to mind the question: “Why do the stronger prey upon the weaker?” because if my words were not written from 40 miles away, this would have been a verbal confrontation, and I am not sure who would have come out on top. Both of us are too skilled in psychological warfare from past confrontations. I forgot my coffee….bad at this time of morning. For me, anyway. now I am coughing up my lungs because one side effect of my medications is that I sometimes (a lot) swallow wrong….. not my favorite side effect, but one that I can live with. I have put that person’s email address into my blocked, junk mail folder because that is all it is, junk mail drivel, and a obvious attempt at the “misery loves company” gambit. It was the only thing I could do to protect myself from this person’s twisted logic and scathing words. And, if there is one thing I have learned about coming out of depressive episodes that send you running for the nearest funny farm, it is too protect myself at all costs because it is too easy to spiral back down the rabbit hole, and the Mad Hatter is always willing to have tea and biscuits.
Bipolar tends to be a lifelong illness. Very few people are ever considered “cured” which is one reason why early diagnosis and treatment are so vital. Most people with the disorder will continue to experience high and low episodes with periods that are nearly symptom free in between, although some people will continue to display some symptoms of the disorder. There are four types of Bipolar that are recognized in the Diagnostic and Statistical Manual or DSM.